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Dystonia Medical Research Foundation Canada

The Dystonia Medical Research Foundation (DMRF) Canada is a registered non-profit Canadian charity that was founded in 1976 by Samuel and Frances Belzberg of Vancouver, after their daughter was diagnosed with generalized dystonia. DMRF Canada is the only charity in Canada focused solely on individuals and their families who suffer from dystonia, a neurological movement disorder. An estimated 50,000 Canadians are affected by dystonia. The mission of the DMRF Canada is threefold: to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well-being of affected individuals and families. Research: DMRF Canada funds the best and most relevant dystonia medical research worldwide and in Canada. Awareness and Education: DMRF Canada works with volunteers, medical professionals (neurologists, movement disorder clinics), and the media to raises awareness of dystonia in a variety of ways: through two printed newsletters, online updates, social media, media relations activities, events and activities at local community meetings, hospitals throughout the country. Support the needs and well-being of affected individuals and families: there are currently 36 Group Leaders and Area Contacts representing 26 areas across the country. The purpose of these groups is to provide support, guidance, and options to those individuals (and their families) who suffer from dystonia.