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Volunteer Board of Directors


  • Opportunité virtuelle

Description

Get to Know Us: Hope for Ataxia (HFA) is a non-profit organization and was created to make a meaningful and positive impact in the rare diseases narrative. Our mission is to raise awareness of Ataxia globally through connecting, informing and inspiring people through fundraising and awareness campaigns.

Our actions are infused with our values of inclusion, transparency, collaboration, building relationships, and innovation.

We are not practitioners or experts, rather, individuals with lived experience who are open to sharing our stories. Some of the active work we do includes hosting virtual support groups on a regular basis for anyone in the Ataxia community, hosting awareness and fundraising campaigns partnering with Ataxia charities and national organizations, profiling individuals in the Ataxia community through our social media channels, producing merchandise for purchase, and sharing articles about Ataxians around the globe.

You Are: Driven and passionate about making a difference. Committed to the mission, vision, and values of HFA, you will provide strategic oversight and guidance to the team. Overall, you will have a direct influence on maximizing the impact of our organization.

Together we’ll be: A passionate non-profit team, part of ground-breaking leaders in the rare diseases community. Working collaboratively as part of a close-knit team, you will be part of the strategic process.

We are looking for individuals with previous Board and/or senior executive level experience, along with backgrounds in finance, law, marketing, and fundraising.

Interested candidates please apply by resume to talent@hopeforataxia.org.

Qui vous aiderez

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Hope for Ataxia

Aims to raise awareness of Ataxia globally.


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