Hope for Ataxia (HFA) is a non-profit organization and was created to make a meaningful and positive impact in the rare diseases narrative. Our mission is to raise awareness of Ataxia globally through connecting, informing and inspiring people through fundraising and awareness campaigns. Our actions are infused with our values of inclusion, transparency, collaboration, building relationships, and innovation.
We are not practitioners or experts, rather, individuals with lived experience who are open to sharing our stories. Some of the active work we do includes hosting virtual support groups on a regular basis for anyone in the Ataxia community, hosting awareness and fundraising campaigns partnering with Ataxia charities and national organizations, profiling individuals in the Ataxia community through our social media channels, producing merchandise for purchase, and sharing articles about Ataxians around the globe.